This morning while the coffee G had made was brewing, I settled onto the couch for my 58 year (at least) Sunday morning ritual of reading the Sunday comics. That has always been the section I head for first thing. It works well for us. G usually doesn’t read them at all. So they are mine - all mine.
I got to thinking about the impact the "funny papers" have had on my life through these years. When I was a small child, I was aware of measuring time. I had years and months down pretty well, but weeks were another thing.
I, like most young children, couldn’t wait for Christmas. Keeping up with the weeks until Christmas was something I couldn’t always grasp. When I was a child, we didn’t attend a "high church" so I knew nothing of an Advent wreath which would have made the wait make more sense, but my dad and I had a kind of advent wreath. It was using the number of "funny papers" until Christmas. Every Sunday I would ask how many more funny papers until Christmas.
I have found inspiration in the pages of these comics. I have found solace. I have found escape. I've found lessons in their frames. They have been important in my life.
Today was no exception, but I didn’t know what was coming. Since my diagnosis of cancer, I have looked upon the disease as though it was just a simple infection. We do the surgery; we do the treatments, and we get over it. Simple as that. No big deal. It’s not like it’s deadly or something. I mean really!
Then today I read one of my favorite strips. One of the characters has been fighting breast cancer for a number of years. She went for a scan, and was told she was fine. Then her physician found that her results had been confused with someone else’s. She is back in chemo and her prognosis doesn’t look good.
That brought me to reality. Although I have great confidence that I will get through this with no lingering problems, there is that chance. It IS cancer, after all. I shouldn’t take my complete recovery for granted. It may not happen. Another lesson to be taken to heart.
I wonder how many more "funny papers" are in my future? I wish there were an answer this time.
Sunday, May 27, 2007
Saturday, May 26, 2007
Brag, brag
I was full of myself yesterday. I thought the additional steroid pills had done the trick and I was not going to be completely laid up again. Um - no. That wasn’t the way it was.
The pain did stay away for about 12 hours, but last night it hit - suddenly. All through the day I felt good. No muscle or joint aches. We even went out to dinner. All systems were go.
About 9:30pm I was sitting on the couch when it hit. First the knees, then the hips. I took a very hot bath, but it didn’t really help. I took the pain pills, but when your hips hurt, sleeping is difficult.
By 11am this morning, I was really in pain again. I took two of the little jewels and that knocked me out for a while.
To top off the morning, I decided yesterday that I would try Simone on her thyroid pills again. She is losing even more hair on her back, and the vet thought she had a thyroid deficiency. So she is getting rather bald on her back. What a pair of hairless wonders we are making!
I gave her the third pill this morning. It had the effect they have had before. It seems as soon as she has had three pills, she gets sick. She began her "licking." She was nauseated. I gave her an anti-nausea pill, but I was too late. She headed for the office, and you guessed it. I cleaned that up and treated her again.
So today what we had around here was a sleepy woman, a sleepy dog and a rainy day.
She is finally better and so am I. Two more treatments for me, who knows for Simone. Poor G. All he can do it sit on the sidelines, observe and wonder.
The pain did stay away for about 12 hours, but last night it hit - suddenly. All through the day I felt good. No muscle or joint aches. We even went out to dinner. All systems were go.
About 9:30pm I was sitting on the couch when it hit. First the knees, then the hips. I took a very hot bath, but it didn’t really help. I took the pain pills, but when your hips hurt, sleeping is difficult.
By 11am this morning, I was really in pain again. I took two of the little jewels and that knocked me out for a while.
To top off the morning, I decided yesterday that I would try Simone on her thyroid pills again. She is losing even more hair on her back, and the vet thought she had a thyroid deficiency. So she is getting rather bald on her back. What a pair of hairless wonders we are making!
I gave her the third pill this morning. It had the effect they have had before. It seems as soon as she has had three pills, she gets sick. She began her "licking." She was nauseated. I gave her an anti-nausea pill, but I was too late. She headed for the office, and you guessed it. I cleaned that up and treated her again.
So today what we had around here was a sleepy woman, a sleepy dog and a rainy day.
She is finally better and so am I. Two more treatments for me, who knows for Simone. Poor G. All he can do it sit on the sidelines, observe and wonder.
Thursday, May 24, 2007
Tidbits
It has been a long time since I have been here! A little catching up is in order.
The trip to the SSB was a good one. Leaving on Thursday gave me time to bake the cookies for the community club dinner on Friday so they wouldn’t be little crumbs after the 5 ½ hour trip. I was able to cut all the vegetables for the hamburgers and hot dogs on Friday also.
G and out neighbor E went to Kerrville to pick up the new "toy" - a utility vehicle that I believe will become my magic chariot to traverse the property since walking is certainly not something I can easily do up there.
The dinner was well received on Friday night. The crowd was fairly large, and we did have enough food. I think that was partially due to the fact that the under 15 crowd was sparse.
For some reason I was very fatigued. Saturday I had promised I would go over to P and M’s to teach her to knit. Her broken ankle is keeping her pretty close to home since it is her right. That means she cannot drive for another 3 weeks at least. Of course, she has no car since her’s was totalled.
My fatigue has continued. I am supposed to go get my Neulasta shot today. I checked with the nurse about the time, and she said I could come whenever since it was only one shot. I am going to wait untl about 11am as opposed to 9am to rest a little more.
I am just getting over the skin rash from the chemo on the 9th. I guess I’ll start all over on Sunday if things hold to the way it was then. The muscle and joint pains started mildly 3 hours after chemo yesterday.
Hope all is well for you.
The trip to the SSB was a good one. Leaving on Thursday gave me time to bake the cookies for the community club dinner on Friday so they wouldn’t be little crumbs after the 5 ½ hour trip. I was able to cut all the vegetables for the hamburgers and hot dogs on Friday also.
G and out neighbor E went to Kerrville to pick up the new "toy" - a utility vehicle that I believe will become my magic chariot to traverse the property since walking is certainly not something I can easily do up there.
The dinner was well received on Friday night. The crowd was fairly large, and we did have enough food. I think that was partially due to the fact that the under 15 crowd was sparse.
For some reason I was very fatigued. Saturday I had promised I would go over to P and M’s to teach her to knit. Her broken ankle is keeping her pretty close to home since it is her right. That means she cannot drive for another 3 weeks at least. Of course, she has no car since her’s was totalled.
My fatigue has continued. I am supposed to go get my Neulasta shot today. I checked with the nurse about the time, and she said I could come whenever since it was only one shot. I am going to wait untl about 11am as opposed to 9am to rest a little more.
I am just getting over the skin rash from the chemo on the 9th. I guess I’ll start all over on Sunday if things hold to the way it was then. The muscle and joint pains started mildly 3 hours after chemo yesterday.
Hope all is well for you.
Thursday, May 17, 2007
TMI - way too much!
Yes, my quasi Victorian mind set thinks this is too much information, but here I go anyway.
Yesterday I was alarmed to find blood in my stool. I went to the file to read the information about the drug I am getting this go on chemo. It said that even though this is not an emergency, I should contact my doctor within 24 hours because it is a situation that needs medical attention.
I sat on the couch for a few minutes. I was thinking I could just forget about this little development. I didn’t want it to mean that we couldn’t travel this weekend. But then I could see us getting 5 ½ hours away, and me getting in a really serious situation. So I bit the bullet and called
Of course, the office was closed. Now I know their schedule. I KNOW people were still in the office. In fact, I was sure Dr Poison was still in the office. He runs so late. But I got the answering service.
The operator I was speaking to was rather distant as I explained my situation. In fact, I was beginning to think I was a fool for calling. By the time she began to speak, I was becoming a basket case. She said she would have the on call physician call. I was about to cry, and I was really becooming scared.
A few minutes later I got the call. I think it was the doctor the surgeon wanted me to see. I really wish I could have gotten in with her. She was so positive and bubbly. She said a lot of her patients have problems with this "easier" regime. Her first question was if I had been constipated. Well, as a matter of fact, the pain killers put my intestines to sleep. So yes, I had been. In fact, I still had pains in my stomach. BUt I still wasn't assured because here it was three days later.
"That’s probably it" she responded. She suggested stool softeners, and advised if it got worse, I would have to go to the hospital.
I am happy to report that all systems appear to be in normal working condition! Aren’t you glad you read this. I should be so ashamed! This is not a normal report on a condition. I am turning into my mother as surely as I sit here.
Yesterday I was alarmed to find blood in my stool. I went to the file to read the information about the drug I am getting this go on chemo. It said that even though this is not an emergency, I should contact my doctor within 24 hours because it is a situation that needs medical attention.
I sat on the couch for a few minutes. I was thinking I could just forget about this little development. I didn’t want it to mean that we couldn’t travel this weekend. But then I could see us getting 5 ½ hours away, and me getting in a really serious situation. So I bit the bullet and called
Of course, the office was closed. Now I know their schedule. I KNOW people were still in the office. In fact, I was sure Dr Poison was still in the office. He runs so late. But I got the answering service.
The operator I was speaking to was rather distant as I explained my situation. In fact, I was beginning to think I was a fool for calling. By the time she began to speak, I was becoming a basket case. She said she would have the on call physician call. I was about to cry, and I was really becooming scared.
A few minutes later I got the call. I think it was the doctor the surgeon wanted me to see. I really wish I could have gotten in with her. She was so positive and bubbly. She said a lot of her patients have problems with this "easier" regime. Her first question was if I had been constipated. Well, as a matter of fact, the pain killers put my intestines to sleep. So yes, I had been. In fact, I still had pains in my stomach. BUt I still wasn't assured because here it was three days later.
"That’s probably it" she responded. She suggested stool softeners, and advised if it got worse, I would have to go to the hospital.
I am happy to report that all systems appear to be in normal working condition! Aren’t you glad you read this. I should be so ashamed! This is not a normal report on a condition. I am turning into my mother as surely as I sit here.
Wednesday, May 16, 2007
The best laid plans . . .
Every single plan I had for yesterday simply evaporated. I can’t believe how much a day can change in 10 seconds!
I had my early appointment with the oncologist which I was dreading so much. Not because I was expecting something horrible from that appointment, but because I was so sleepy that I didn’t want to leave the house.
I don’t know what is causing me to not be sleepy at bed time, but it is killing me. Both Sunday and Monday nights I couldn’t fall asleep until at least 1 am. Since G gets up at 6:10, I get up also.
I was dragging around here yesterday morning. I finally got myself out the door - 15 minutes late. In my rush, I picked up the list of things to take to the SSB ( we are hosting the dinner at Wide Spot in the Road Club) instead of the handicapped placard (I TOLD you I was sleepy). I was hoping the valet parkers would be there, so I had the extra set if keys to my chariot with me.
Alas, when I arrived, there were no valet parkers yet. I guess they come to work at 9:00. When I checked my bag for the placard, it was not there. The list sat there in the bottom of my bag and gloated at me. I was parked in a handicapped space, and as I looked around, there were no close spaces. My knees preclude much walking, and the chemo drug from the first round still sends my heart pitter patting without much exertion.
Then I remembered! I still have my dad’s placard in my glove box. Just because it expired in 2005 shouldn’t deter me! I turned it over and placed it on the dash. And I was off and just in time for the appointment - nothing to spare for a change.
The oncologist was there when I was taken back, but he made me cool my heels for 45 minutes anyway. As I aired my laundry list of complaints, he wasn’t too concerned. He just prescribed more steroids. This time 5 pills before chemo and 5 after with the hopes that my joints won’t freeze up again. But I can’t believe the amount I am now going to get. I really hoped the chemo would help me lose some weight, but with all those steroids forget it!
After I left the doctor’s office I was going to that little French boutique - Target, but without my placard, I decided not to do that. I went to the computer store instead to have the lap top fixed. I had been without Wi-Fi since Easter. I left Gertrude with them and went into the store for a printer cartridge and a fire wire for the video camera. As I was leaving, they stopped me at the service desk. The "problem" with Gertrude was s simple use of a function key. That’s what turned the radio back on
So I get in my chariot, turned the key, and there was an explosion under the hood. A little smoke rose into the air. My car was dead. Absolutely dead, The first thought was G was right - we are in the market for another car (that being brought on by my having found a bad place in the upholstery). I called him at work because my phone was running on a low battery, and there was no using the car charger because the car was, remember, dead.
I asked him to call our mechanic to send a wrecker because I didn’t know how long my phone would last. He said he was coming instead.
K had been calling me without me answering for about an hour. She finally left a disparate message telling me she thought I must surely be in the hospital. I called her back - again - this time leaving her a message that my car had just exploded. She left work to sit with me.
The explosion was the battery. I don’t know what caused it. The mechanic just called to tell me the car is ready. Finding out what was wrong should be interesting.
After waiting for the wrecker and then taking K to lunch, the day was shot. So I have played catch up today since we are off to the SSB tomorrow.
So I am still itching, the port still hurts, I had to get all the groceries for the dinner today, and I will go to see Lady Bug in a kindergarten program in an hour. Situation normal.
I had my early appointment with the oncologist which I was dreading so much. Not because I was expecting something horrible from that appointment, but because I was so sleepy that I didn’t want to leave the house.
I don’t know what is causing me to not be sleepy at bed time, but it is killing me. Both Sunday and Monday nights I couldn’t fall asleep until at least 1 am. Since G gets up at 6:10, I get up also.
I was dragging around here yesterday morning. I finally got myself out the door - 15 minutes late. In my rush, I picked up the list of things to take to the SSB ( we are hosting the dinner at Wide Spot in the Road Club) instead of the handicapped placard (I TOLD you I was sleepy). I was hoping the valet parkers would be there, so I had the extra set if keys to my chariot with me.
Alas, when I arrived, there were no valet parkers yet. I guess they come to work at 9:00. When I checked my bag for the placard, it was not there. The list sat there in the bottom of my bag and gloated at me. I was parked in a handicapped space, and as I looked around, there were no close spaces. My knees preclude much walking, and the chemo drug from the first round still sends my heart pitter patting without much exertion.
Then I remembered! I still have my dad’s placard in my glove box. Just because it expired in 2005 shouldn’t deter me! I turned it over and placed it on the dash. And I was off and just in time for the appointment - nothing to spare for a change.
The oncologist was there when I was taken back, but he made me cool my heels for 45 minutes anyway. As I aired my laundry list of complaints, he wasn’t too concerned. He just prescribed more steroids. This time 5 pills before chemo and 5 after with the hopes that my joints won’t freeze up again. But I can’t believe the amount I am now going to get. I really hoped the chemo would help me lose some weight, but with all those steroids forget it!
After I left the doctor’s office I was going to that little French boutique - Target, but without my placard, I decided not to do that. I went to the computer store instead to have the lap top fixed. I had been without Wi-Fi since Easter. I left Gertrude with them and went into the store for a printer cartridge and a fire wire for the video camera. As I was leaving, they stopped me at the service desk. The "problem" with Gertrude was s simple use of a function key. That’s what turned the radio back on
So I get in my chariot, turned the key, and there was an explosion under the hood. A little smoke rose into the air. My car was dead. Absolutely dead, The first thought was G was right - we are in the market for another car (that being brought on by my having found a bad place in the upholstery). I called him at work because my phone was running on a low battery, and there was no using the car charger because the car was, remember, dead.
I asked him to call our mechanic to send a wrecker because I didn’t know how long my phone would last. He said he was coming instead.
K had been calling me without me answering for about an hour. She finally left a disparate message telling me she thought I must surely be in the hospital. I called her back - again - this time leaving her a message that my car had just exploded. She left work to sit with me.
The explosion was the battery. I don’t know what caused it. The mechanic just called to tell me the car is ready. Finding out what was wrong should be interesting.
After waiting for the wrecker and then taking K to lunch, the day was shot. So I have played catch up today since we are off to the SSB tomorrow.
So I am still itching, the port still hurts, I had to get all the groceries for the dinner today, and I will go to see Lady Bug in a kindergarten program in an hour. Situation normal.
Sunday, May 13, 2007
Ouch - part 2
I think I was gleefully expecting to breeze through these next chemo sessions without any problem. It seems that is not going to be the reality. The muscle/joint pains are easing somewhat, and, although I am still not comfortable, I am not reduced to tears. My lower back, hips, knees, and ankles are still hurting quite a lot.
Yesterday I was experiencing a sharp pain around the port. Today there is still some pain which I will certainly bring up to the oncologist on Tuesday. I don't think it is really serious - at least not serious enough to call the doctor on call. I am concerned though.
I reread the information about this drug. Now I know why they gave me benadril through the IV. This one can and has caused some severe allergic reactions. I have very sensitive skin. I am having break outs on my hands, and I think it is due to the chemo.
At least there are only three more. Of course, then I begin on the pills, and I have heard they have their own set of side effects. I get them for five years, but as leeann said, the reverse side of the coin is a different matter.
I'll get through this and stop whining soon.
Yesterday I was experiencing a sharp pain around the port. Today there is still some pain which I will certainly bring up to the oncologist on Tuesday. I don't think it is really serious - at least not serious enough to call the doctor on call. I am concerned though.
I reread the information about this drug. Now I know why they gave me benadril through the IV. This one can and has caused some severe allergic reactions. I have very sensitive skin. I am having break outs on my hands, and I think it is due to the chemo.
At least there are only three more. Of course, then I begin on the pills, and I have heard they have their own set of side effects. I get them for five years, but as leeann said, the reverse side of the coin is a different matter.
I'll get through this and stop whining soon.
Friday, May 11, 2007
Ouch!
Last night, we got a lot of rain! I mention this because I'm not sure if it was the change in weather, the new chemo treatment, or the Neulasta, but I am really hurting this morning.
My joint are killing me. This is new. I've not had this kind of reaction before. But there are too many variables right now to figure out what is causing the pain.
Oh well - only three more treatments. I'll make that - easily.
My joint are killing me. This is new. I've not had this kind of reaction before. But there are too many variables right now to figure out what is causing the pain.
Oh well - only three more treatments. I'll make that - easily.
Wednesday, May 09, 2007
Trade off
I began the new treatment in chemo today. I no longer have to go on the second day for IV fluids and the Neulasta shot. I just have to get the shot. What they DIDN"T tell me was that this new drug takes 3 hours! I left the house at 9:15 this morning and walked in at 3:26 this afternoon.
We'll see that the effects of this drug are. I didn't have trouble with the others, and this one has been promised to be better tolerated.
I was surprised that I got IV Benadril. I think I'll toddle off for a little nappy-poo. See ya!
We'll see that the effects of this drug are. I didn't have trouble with the others, and this one has been promised to be better tolerated.
I was surprised that I got IV Benadril. I think I'll toddle off for a little nappy-poo. See ya!
Tuesday, May 08, 2007
How sad
Facts are facts. I must face the reality that the relationship that I considered to be my best friend has finally died. I cannot administer life support anymore. I am so sad.
I really thought this person was really my best friend. I have always been there for her. When her mother died, I provided food for her family and those who gathered after the funeral. When Dad died, nothing.
That statement sounds petty. I’m not out to get more from a relationship than I give, but that was just an example of how this "friendship" has been going.
She and I taught together and were practically inseparable. I retired and she went into IT work. We would email, which is really silly. We live four blocks apart. I knew her hours were early and long, so I respected her rest time and didn’t call. I would wait for her to call me.
Now she has been "downsized." There were promises of getting together, etc. She said she would go with me to my chemo and so on. I have not heard from her.
No I lied. I have caller ID. She DID call once - when I was at chemo. Childish as it sounds, I decided to see if she would call again. Nope.
So I have come to the conclusion that this relationship should be declared deceased. It hurts. I am in mourning for it.
I really thought this person was really my best friend. I have always been there for her. When her mother died, I provided food for her family and those who gathered after the funeral. When Dad died, nothing.
That statement sounds petty. I’m not out to get more from a relationship than I give, but that was just an example of how this "friendship" has been going.
She and I taught together and were practically inseparable. I retired and she went into IT work. We would email, which is really silly. We live four blocks apart. I knew her hours were early and long, so I respected her rest time and didn’t call. I would wait for her to call me.
Now she has been "downsized." There were promises of getting together, etc. She said she would go with me to my chemo and so on. I have not heard from her.
No I lied. I have caller ID. She DID call once - when I was at chemo. Childish as it sounds, I decided to see if she would call again. Nope.
So I have come to the conclusion that this relationship should be declared deceased. It hurts. I am in mourning for it.
Monday, May 07, 2007
What I Did on My Spring Vacation (partially)
Yes, I am still alive and kicking. We returned from our trip Friday afternoon. Saturday was spent simply resting, and yesterday was church and family dinner.
Our trip to Chicago was literally fantastic. We were able to take a very special trip there. We belong to an organization here through which we were able to take private rail cars to Chicago, The man who owns these cars has a motto that is so true. It’s not the destination, it’s the trip.
The cars were a sleeper car and a living room/dining room/observation car. There were compartments in the sleeped that had a suite bath between every two. The shower was full sized with a glass enclosure and full tile. The toilet was also full sized - unlike the "new" sleepers that are on Amtrak The living room/dining room/observation car was so plush. Most of our time was spent in the observation car.
There were ten of us aboard these two cars, and there were three crew members. Two "car attendants" and one chef. The crew treated us like royalty!
We left Houston from the Amtrak station about 11 pm. We were scheduled to leave about 9, but the train from New Orleans was late. Imagine that. We were headed to San Antonio where we would be hooked onto the Texas Eagle. That meant that we would have wait time in San Antonio regardless of when we arrived because the Eagle isn’t scheduled to leave San Antonio until 7 am.
Sleeping wasn’t really an option once we were underway. The track between Houston and San Antonio is so rough. If you aren’t used to the rocking and rolling, forget a sound sleep. Once we got into town it was easier, but I missed my fan!
The trip to Chicago was wonderful. Breakfasts pretty much cooked to order and served in the booths in the observation car. We had lots of scenery to look at and enjoyed lots of conversation - when people were not on the back platform sounding the whistle!
The second night on board sleeping was much easier. Exhaustion took over. More scenery the next day and our arrival in Chicago was only an hour late.
The weather in Chicago was beautiful. When we arrived on Sunday, everyone was out and walking or sunbathing. The traffic on the Magnificent Mile was horrible because of that!
When we were to turn on the street with our hotel, we found it to be blocked by three fire trucks and an ambulance. Fortunately it was not our hotel. A guy in a condo in the next block fell asleep and set his mattress on fire. It added to our excitement however!
What a great break from chemo! Four more to go. I’m over the hump. And I still love Chicago.
Our trip to Chicago was literally fantastic. We were able to take a very special trip there. We belong to an organization here through which we were able to take private rail cars to Chicago, The man who owns these cars has a motto that is so true. It’s not the destination, it’s the trip.
The cars were a sleeper car and a living room/dining room/observation car. There were compartments in the sleeped that had a suite bath between every two. The shower was full sized with a glass enclosure and full tile. The toilet was also full sized - unlike the "new" sleepers that are on Amtrak The living room/dining room/observation car was so plush. Most of our time was spent in the observation car.
There were ten of us aboard these two cars, and there were three crew members. Two "car attendants" and one chef. The crew treated us like royalty!
We left Houston from the Amtrak station about 11 pm. We were scheduled to leave about 9, but the train from New Orleans was late. Imagine that. We were headed to San Antonio where we would be hooked onto the Texas Eagle. That meant that we would have wait time in San Antonio regardless of when we arrived because the Eagle isn’t scheduled to leave San Antonio until 7 am.
Sleeping wasn’t really an option once we were underway. The track between Houston and San Antonio is so rough. If you aren’t used to the rocking and rolling, forget a sound sleep. Once we got into town it was easier, but I missed my fan!
The trip to Chicago was wonderful. Breakfasts pretty much cooked to order and served in the booths in the observation car. We had lots of scenery to look at and enjoyed lots of conversation - when people were not on the back platform sounding the whistle!
The second night on board sleeping was much easier. Exhaustion took over. More scenery the next day and our arrival in Chicago was only an hour late.
The weather in Chicago was beautiful. When we arrived on Sunday, everyone was out and walking or sunbathing. The traffic on the Magnificent Mile was horrible because of that!
When we were to turn on the street with our hotel, we found it to be blocked by three fire trucks and an ambulance. Fortunately it was not our hotel. A guy in a condo in the next block fell asleep and set his mattress on fire. It added to our excitement however!
What a great break from chemo! Four more to go. I’m over the hump. And I still love Chicago.
Thursday, April 26, 2007
Here and there
This week is hectic, but it is the last of the really hectic ones. This is the last of the double drug treatment and no more of the fluids the next day. I still will have chemo every two weeks, but I only have to go for the injection(s) the next day!
Adding to the hectic nature is packing for Chicago on Friday. I keep hoping we will hear something about any limit on luggage. I don’t know which bags to pack
.
I am really random in thinking today! My mind just flits from place to place. I hope this is not indicative of what is to come this week. I have way too much to do. I can’t afford to be flitting from place to place.
I was hoping the new drug I would be on for the next four weeks would be easy. That was until I talked to a woman at chemo today. Her regime is the same as mine, and the .one I will be starting has been hard on her. My mantra will have to be the same.. Everyone reacts differently. These hard ones have been fairly easy
.
Well, see you in about a week and a half.
Adding to the hectic nature is packing for Chicago on Friday. I keep hoping we will hear something about any limit on luggage. I don’t know which bags to pack
.
I am really random in thinking today! My mind just flits from place to place. I hope this is not indicative of what is to come this week. I have way too much to do. I can’t afford to be flitting from place to place.
I was hoping the new drug I would be on for the next four weeks would be easy. That was until I talked to a woman at chemo today. Her regime is the same as mine, and the .one I will be starting has been hard on her. My mantra will have to be the same.. Everyone reacts differently. These hard ones have been fairly easy
.
Well, see you in about a week and a half.
Friday, April 20, 2007
What do you want?
I can honestly say that I really do love my sister in law. We get along famously. She is quite a dear, but . . . If you are a Dr Phil fan, you would know that he would say that this is my real feeling. I guess it is, even though I would still do anything in the world for her. The but is I'm not sure how much common sense she had. She is in real life Dr Psychologist, so we know the book smarts are definitely there.
The reason I am doubting common sense is that I got an email the other day. They are moving a china cabinet to their house on the next mountains to the SSB. She wants G to help P move it in. OK, not a problemo. Tomorrow would work really well.
They are leaving this morning from the Capital City, with the expectation of arriving about noon. We are leaving Swampland with the expectation of arriving about 5:30. Wide Spot in the Road has its community club meeting this evening at 6:30. It is a covered dish dinner. I have to warm our dish. She wants help when we get there.
Um, we still have to get Simone settled and the house opened. Does M really think we are going to stop by their house, and then get to ours. After a 5+ hour drive? Don't think so. I told G we would stop on the way to WSITR. Knowing my brother in law, he will have the thing moved by 1 and it will be set up with dishes in it by 2!
The reason I am doubting common sense is that I got an email the other day. They are moving a china cabinet to their house on the next mountains to the SSB. She wants G to help P move it in. OK, not a problemo. Tomorrow would work really well.
They are leaving this morning from the Capital City, with the expectation of arriving about noon. We are leaving Swampland with the expectation of arriving about 5:30. Wide Spot in the Road has its community club meeting this evening at 6:30. It is a covered dish dinner. I have to warm our dish. She wants help when we get there.
Um, we still have to get Simone settled and the house opened. Does M really think we are going to stop by their house, and then get to ours. After a 5+ hour drive? Don't think so. I told G we would stop on the way to WSITR. Knowing my brother in law, he will have the thing moved by 1 and it will be set up with dishes in it by 2!
Wednesday, April 18, 2007
The long awaited Easter canned post
Spending Easter in the Texas Hill Country at the SSB has proven to be a questionable issue. We have had our house there three and a half years now, and Easter has been quite interesting.
The first year, my niece and her family were here along with my daughter and her family, not to mention my brother in law and sister in law. We like to get together when everyone is here, and that seems to be Christmas and Easter. Christmas is not the problem - ever.
The plan was for us to go over to the in laws for Saturday night dinner, and Easter Sunday would be here. The men folks here were working on the front deck Saturday until early afternoon. We decided to sit down to play a board game. As we were playing, the skies began to get dark. The weather said there were storms heading our way. They got darker and darker, and finally the lightning and thunder began.
About 2 pm, the electricity went out. Being all too citified at that point, and not thinking at all, when son in law decided he really needed a shower. We said to go ahead - no problem. We are on a well. There was enough water in the tank for a shower. Then we were out. We felt quite stupid.
About 5, we headed out to the in laws. It had been raining heavily, and the roads were very muddy (they are not paved - remember). But we were confident because we have 4-wheel drive in the troop carrier. As we were going up the in laws road, we met my niece and her husband who rolled down the window as he forced us off the road and yelled "no 4 wheel drive!" They were heading back to Austin. The in laws also had no water, and their son was little bitty and sick with an ear infection .
My brother in law was having to fix the evening meal on the gas grill because our kitchens are both electric. That was the only choice. The menu was a whole filet and potatoes. The deck he was using faces directly north. The wind was from the north. E had difficulty keeping the grill lit.
The resulting meal was interesting. Some of the potatoes were burned and some were raw. The filet was rather rare, but that is fine with me.
Shortly after dinner, we decided we really better head home. It was dark, and the lights were still out. Lady Bug had never been through a power outage. She was about three at the time. She could not understand why she couldn’t watch movies and we were sitting around in the dark with candles burning. Fortunately, S’s lap top had long lasting battery and we used that for her movies.
Needless to say we went to bed early, only to be awakened at 2am when the lights came back on.
Last year, we had bad weather again. We stood at the patio door on the front of the house to watch the weather happen outside. It was blowing again with a thunder storm. As we were watching, a tornado (small one, thank you God) passed to our left heading toward the other people on the next hill.
That brings us to this year. M and E were here again. We knew there was going to be cold weather and rain. That dashed all hopes for an outside egg hunt. Mid afternoon it was 31 degrees. It began to sleet, then snow. We had an inch accumulation on the back deck. But we went over for an Easter egg hunt and dinner - again.
Getting down out steps was a trick. They were so icy. The roads were muddy, and at one point there was a huge puddle. We made it. Things went better because the electricity stayed on. That was really great.
Next year, we are staying in Swampland!
Tuesday, April 17, 2007
Hooray!!!
Today's visit to the oncologist was really great! I have one more visit of the really hard chemo, then we switch. My next course is a much less toxic drug, and the really good news is that I don't have to come back the next day for 4 IV bags that include fluids! I only have to take the shot that boosts my white blood cells. What good news.
As far as the canned post, I am going to try to get that one up soon. We had a pretty weird time at the SSB the last time. It's worth recording here.
As far as the canned post, I am going to try to get that one up soon. We had a pretty weird time at the SSB the last time. It's worth recording here.
Friday, April 13, 2007
Where has the time gone?
I don't really know how the time has flown. When we were at the SSB, I wrote a post for Tuesday. The problem was that for some reason, the laptop cannot access WiFi because the "radio" is disabled. It still is. I'm at a loss here. I have transferred the post to a CD and I'll get it onto Della here sometime.
This week has been full of trips to the medicos. I have been really tired. I didn't get any rest at the SSB, and this week has just compounded the fatigue.
I'll be back soon
This week has been full of trips to the medicos. I have been really tired. I didn't get any rest at the SSB, and this week has just compounded the fatigue.
I'll be back soon
Thursday, April 05, 2007
Today was my bi monthly appointment with the oncologist. Two weeks ago, I made it for 8:30 because when it was 9:45 I didn’t get out of there until almost noon. Well . . . I didn’t get to see him until 9:30. I know there was a wreck on the freeway that brings him to that office, but . . .
It was a good appointment however. He is amazed that I am tolerating the chemo so well. He says that I am an easy patient.
The best news is that, even though there will be another round of four doses of chemo, after I complete this there will be no radiation. We will move straight to the pills. I have a good chance of beating this thing all together.
I reminded him of the Chicago trip, and he was fine with it. That’s good since it is paid for.
We are off the SSB for Easter. It looks like it will be placed in the usual family Easter there. When we were all together there three years ago, there were terrible thunder storms and flooding rains. This year it looks like freezing weather with snow/sleet.
Easter egg hunt anyone?
Have a great Easter or weekend - whichever you celebrate. I’ll be back with you on Tuesday.
It was a good appointment however. He is amazed that I am tolerating the chemo so well. He says that I am an easy patient.
The best news is that, even though there will be another round of four doses of chemo, after I complete this there will be no radiation. We will move straight to the pills. I have a good chance of beating this thing all together.
I reminded him of the Chicago trip, and he was fine with it. That’s good since it is paid for.
We are off the SSB for Easter. It looks like it will be placed in the usual family Easter there. When we were all together there three years ago, there were terrible thunder storms and flooding rains. This year it looks like freezing weather with snow/sleet.
Easter egg hunt anyone?
Have a great Easter or weekend - whichever you celebrate. I’ll be back with you on Tuesday.
Wednesday, April 04, 2007
Marching to a different drummer
I sometimes think I must be the one who marches to a different drummer. I really do try to keep a positive attitude, but there is always someone who comes along and bashes it all to hell.
Yesterday, I ventured out to the big box store of W*lmrt. That takes quite a bit of courage on my part. I go there knowing that someone will put a crimp into my day. But we are going to Chicago for a week at the end of the month, and I needed clothes for the trip! My last expedition for clothes was last year when we went to D*sneyland for a week. Since I do not know what this chemo will do to my body, I didn’t want to spend a fortune on clothing, even if it is Chicago!
I had completed my shopping and headed for the checkout line. I couldn’t remember how many items I bought, so I didn’t go to the 20 or less line because I hate people who do that. K called my while I was in the longer line, and I was leaning against the closed line beside me, talking to her, while I waited for the three in front of me checked out.
A little old lady about 85 was fitting around behind me, still mulling over the last minute purchases that line the checkout lanes. When I looked up, she asked me if I were in line. No, I just like loitering around at the checkout lines in that store. When I replied that I was in line, she grunted in disgust, and was obviously miffed that I was in line. I guess she thought she should be able to precede me or something.
With that, she took her 25 cartons of jello, 3 bags of hamburger patties, and who know what else, found something else in the merchandise at the lane, and put herself into the 20 or less line.
I was miffed as well as amused. Please deliver me from that kind of attitude! I try to be understanding of those 80+. I have dealt with them, am dealing with them (G’s parents), and if the Lord desires, I’ll be one.
Today, I had the experience of taking one of the cable boxes back to exchange it. I had hoped either K or S would volunteer, but no such luck.
When I got there, there was already a line. There were probably about ten people in front of me, and I almost left. But gasoline is too expensive, and that trip was one that was not to be combined with any other errand, so I was committed to staying.
So my question to myself is why would someone go to this "outlet" if they wanted new service or change their service. It can be done by the telephone. When I got there, one representative was tied up with a couple who wanted to initiate new service, but they couldn’t decide what they wanted. Another representative was tied up with someone who I thought was paying a bill, but I still don’t know what they were doing. They, too, were there for the entire 45 minutes I stood in line.
That left one open for those of us who merely needed to exchange equipment, That was until, alas, another wanted to change service. That brought the entire process to a grinding halt.
The trip that I expected to require 15 minutes tops ended up taking 50 minutes.
I guess I must be the one who is out of step!
Yesterday, I ventured out to the big box store of W*lmrt. That takes quite a bit of courage on my part. I go there knowing that someone will put a crimp into my day. But we are going to Chicago for a week at the end of the month, and I needed clothes for the trip! My last expedition for clothes was last year when we went to D*sneyland for a week. Since I do not know what this chemo will do to my body, I didn’t want to spend a fortune on clothing, even if it is Chicago!
I had completed my shopping and headed for the checkout line. I couldn’t remember how many items I bought, so I didn’t go to the 20 or less line because I hate people who do that. K called my while I was in the longer line, and I was leaning against the closed line beside me, talking to her, while I waited for the three in front of me checked out.
A little old lady about 85 was fitting around behind me, still mulling over the last minute purchases that line the checkout lanes. When I looked up, she asked me if I were in line. No, I just like loitering around at the checkout lines in that store. When I replied that I was in line, she grunted in disgust, and was obviously miffed that I was in line. I guess she thought she should be able to precede me or something.
With that, she took her 25 cartons of jello, 3 bags of hamburger patties, and who know what else, found something else in the merchandise at the lane, and put herself into the 20 or less line.
I was miffed as well as amused. Please deliver me from that kind of attitude! I try to be understanding of those 80+. I have dealt with them, am dealing with them (G’s parents), and if the Lord desires, I’ll be one.
Today, I had the experience of taking one of the cable boxes back to exchange it. I had hoped either K or S would volunteer, but no such luck.
When I got there, there was already a line. There were probably about ten people in front of me, and I almost left. But gasoline is too expensive, and that trip was one that was not to be combined with any other errand, so I was committed to staying.
So my question to myself is why would someone go to this "outlet" if they wanted new service or change their service. It can be done by the telephone. When I got there, one representative was tied up with a couple who wanted to initiate new service, but they couldn’t decide what they wanted. Another representative was tied up with someone who I thought was paying a bill, but I still don’t know what they were doing. They, too, were there for the entire 45 minutes I stood in line.
That left one open for those of us who merely needed to exchange equipment, That was until, alas, another wanted to change service. That brought the entire process to a grinding halt.
The trip that I expected to require 15 minutes tops ended up taking 50 minutes.
I guess I must be the one who is out of step!
Tuesday, April 03, 2007
Body image
A lot of women struggle with problems with body image. I am definitely one of them. I always have and I always will. I’m not trying to make it seem like I am blaming my parents on my problem, but they did have a great deal to do with it. They always made references to me being fat - even when I wasn't .
I decided early on that I would never do that to my children regardless of their body type. K takes after me, which means she takes after my mother. Funny, huh? Mother was on the heavy side too, but never missed a beat to point out that I was "chubby" at six.. B is my father reincarnate. He is tall and thin. But I never said anything about their body types. K has been able to manage well. B doesn’t have to worry unless it’s about putting on weight (oh how I hate that !!).
If you already have body image issues, just get breast cancer. It does wonders to add to your feelings. First you get to have a mutilating surgery. Dr Surgeon did what will hopefully be good later by leaving extra skin, but right now my right breast is a sunken area with a horrible scar down the middle. It is so horrible. I refuse to be seen by anyone but G without the prosthesis.
Now I get to add being bald to my lack of body image. I am not bald yet, but the hair is going fast. I didn’t think it would bother me, but it is. As I have said, I have been wearing a wig for over a year, but there was still something on my head. I think soon there won’t be anything. It is a blow to the old ego.
When I first began this battle, I thought I would be ready for all these changes, but as they occur I wonder if I really am. But then, as with many other things life throws your way, there is nothing to do but accept it and wait until things get better.
I decided early on that I would never do that to my children regardless of their body type. K takes after me, which means she takes after my mother. Funny, huh? Mother was on the heavy side too, but never missed a beat to point out that I was "chubby" at six.. B is my father reincarnate. He is tall and thin. But I never said anything about their body types. K has been able to manage well. B doesn’t have to worry unless it’s about putting on weight (oh how I hate that !!).
If you already have body image issues, just get breast cancer. It does wonders to add to your feelings. First you get to have a mutilating surgery. Dr Surgeon did what will hopefully be good later by leaving extra skin, but right now my right breast is a sunken area with a horrible scar down the middle. It is so horrible. I refuse to be seen by anyone but G without the prosthesis.
Now I get to add being bald to my lack of body image. I am not bald yet, but the hair is going fast. I didn’t think it would bother me, but it is. As I have said, I have been wearing a wig for over a year, but there was still something on my head. I think soon there won’t be anything. It is a blow to the old ego.
When I first began this battle, I thought I would be ready for all these changes, but as they occur I wonder if I really am. But then, as with many other things life throws your way, there is nothing to do but accept it and wait until things get better.
Monday, April 02, 2007
Wee beasties
When I got home from getting the fluids on Thursday, I had an interesting message on the answering machine from my neighbor on the east. She told me she was watching squirrels running in and out of a hole on the south side of my house and birds flying in and out of a hole on the north side. Living in Swampland is so wonderful. Apparently the saying "Mi casa es su casa" is certainly applied to wild life here!
So I remembered a television commercial I had watched. There is a company here who provides quite a number of services from killing bugs in your house to building swimming pools. One of their services is to get rid of invading wildlife. I called them, and they came out Saturday.
It seems like we are not only invaded by the above-mentioned vermin, and yes even birds if they are trying to share my house are vermin, we have "roof rats." They are clever little beasties that get into your attic to live during the night, then leave during the day to forage only to return that evening. Wonderful.
We signed a contract, and they will be here this week to seal up any and all entrance areas into our attic. They will place snap traps - glad our bedroom is downstairs so we won’t be hearing that action. They will also place live traps. The hitch here is that on the contract we are to contact them within 24 hours of finding something in the live trap. Guess what! We will be gone from Friday to Monday. I figure that to be just a tad more than 24 hours.
I wonder what that will do for our contract?
So I remembered a television commercial I had watched. There is a company here who provides quite a number of services from killing bugs in your house to building swimming pools. One of their services is to get rid of invading wildlife. I called them, and they came out Saturday.
It seems like we are not only invaded by the above-mentioned vermin, and yes even birds if they are trying to share my house are vermin, we have "roof rats." They are clever little beasties that get into your attic to live during the night, then leave during the day to forage only to return that evening. Wonderful.
We signed a contract, and they will be here this week to seal up any and all entrance areas into our attic. They will place snap traps - glad our bedroom is downstairs so we won’t be hearing that action. They will also place live traps. The hitch here is that on the contract we are to contact them within 24 hours of finding something in the live trap. Guess what! We will be gone from Friday to Monday. I figure that to be just a tad more than 24 hours.
I wonder what that will do for our contract?
Thursday, March 29, 2007
A strange turn of events
I had the second round of chemo yesterday, and went for fluids today. I will never cease to be amazed at how things happen.
Today I met a fellow breast cancer patient. The difference is that she is a young mother, about 30, with two children and is about five months pregnant. She has had fibroid breasts, and for a long time she was told is was only that. At the beginning of the year, she found it was growing.
They tested, and she ended up having a mastectomy because her tumor was 4.5cm. She had twelve involved lymph nodes. When she went to the restroom, her friend explained that she is listed as a Stage 3, but is more likely a Stage 4 because they cannot do a scan due to her pregnancy.
She has a great attitude. But it is so sad. Young women are not being screened as they should. Breast cancer is hitting these women. They have a right to yearly mammograms too.
As for my hair loss, I am one of the millions of lucky women who have experienced hair loss over the years. I really got tired of it, and I got tired of paying over $60 every six weeks to have cuts and highlights. When I would leave, my hairdresser would say that my hair looked so good. What a load of hog wash! I knew better.
So in December of 2005, I made the decision to buy a wig. I found a circular for a place where I could order on line. They had a sale. It was 2 for 1. I ordered two wigs. One was too light, but I still have it. It’s not really comfortable. Perhaps when all this hair is gone it will be better.
The other I wear almost every day. When I went to get my prosthesis, they said that they also sold wigs. I told the fitter that I was already wearing a wig. She was amazed. It is so natural looking.
Since the first purchase, I have ordered a "summer" wig. That is a necessity here is Swamp Land. I also ordered a human hair one, but I need to do a little styling of it. It’s a little too straight and limp.
I am set for the loss of my hair, and in reality because of my hair history it's not really a big deal to me. I even ordered fake eyelashes along with the human hair wig!
Take care of yourselves! I am going to rest.
Today I met a fellow breast cancer patient. The difference is that she is a young mother, about 30, with two children and is about five months pregnant. She has had fibroid breasts, and for a long time she was told is was only that. At the beginning of the year, she found it was growing.
They tested, and she ended up having a mastectomy because her tumor was 4.5cm. She had twelve involved lymph nodes. When she went to the restroom, her friend explained that she is listed as a Stage 3, but is more likely a Stage 4 because they cannot do a scan due to her pregnancy.
She has a great attitude. But it is so sad. Young women are not being screened as they should. Breast cancer is hitting these women. They have a right to yearly mammograms too.
As for my hair loss, I am one of the millions of lucky women who have experienced hair loss over the years. I really got tired of it, and I got tired of paying over $60 every six weeks to have cuts and highlights. When I would leave, my hairdresser would say that my hair looked so good. What a load of hog wash! I knew better.
So in December of 2005, I made the decision to buy a wig. I found a circular for a place where I could order on line. They had a sale. It was 2 for 1. I ordered two wigs. One was too light, but I still have it. It’s not really comfortable. Perhaps when all this hair is gone it will be better.
The other I wear almost every day. When I went to get my prosthesis, they said that they also sold wigs. I told the fitter that I was already wearing a wig. She was amazed. It is so natural looking.
Since the first purchase, I have ordered a "summer" wig. That is a necessity here is Swamp Land. I also ordered a human hair one, but I need to do a little styling of it. It’s a little too straight and limp.
I am set for the loss of my hair, and in reality because of my hair history it's not really a big deal to me. I even ordered fake eyelashes along with the human hair wig!
Take care of yourselves! I am going to rest.
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